LLS Launches National Patient Registry: Become a Citizen Scientist! (2024)

If you are a blood cancer patient, survivor, caregiverin the United States, or know someone who is, The Leukemia & Lymphoma Society (LLS) needs your help with a research initiative aimed at learning more about COVID-19 and blood cancer patients. We invite patients and survivors to sign up for TheLLS National Patient Registryto help shape discoveries that can improve the quality of life and care for people living with blood cancers.

About the Registry

The LLS National Patient Registry gathers and studies information from patients diagnosed with blood cancers (past or present) to help researchers better understand outcomes and tailor treatments.

The Registry is currently focused on answering important questions about blood cancer patients and COVID-19. This is a unique opportunity for blood cancer patients to join LLS to increase scientific knowledge about how COVID-19 and COVID-19 vaccines affect them.

What you need to know:

-Patients and survivorsin the United Statesare invited to join whether or not you have tested positive for COVID-19 and whether or not you plan to be vaccinated.

-Joining takes less than 10 minutes and can be done on your phone or computer.

-Your information will be kept anonymous. The Registry abides by HIPAA guidelines to ensure any information you share remains confidential and secure.

-There is no cost to you to join the Registry.

We encourage all blood cancer patients and survivors to become “citizen scientists” by joining the Registry today. Together, we will change the future of blood cancer care.

LLS Launches National Patient Registry: Become a Citizen Scientist! (2024)
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